Projekt owner is Johanna Blom, Physiotherapist Neurological Department, University Hospital of Skane, Malmö. In addition to long clinical experience with patients with cervical dystonia, Johanna has also held many workshops and lectures in Sweden and Northern Europe on the subject and has written a book, Muskler i obalans - cervikal dystoni och spasticitet. The aim of this platform is to provide, through digital benefits, a large exercise bank designed for patients with cervical dystonia and to simplify the design and delivery of home exercise programmes.
The platform is developed and managed in collaboration with Dystonia Europe, European Dystonia Patient Association
Jean-Pierre Bleton, PhD, Physiotherapist, Clinical Researcher, Adolphe de Rothschild Foundation Hospital, Paris, France, who has laid the foundations for much of the physiotherapy for dystonia patients, has provided some input and will be more involved for the launch in the rest of Europe.
The cost of developing the platform is paid for by funds from the Boston Scientific Foundation Europe, and is therefore free to the user and will not burden the health care system.
Launch in Europe and in several languages is expected in autumn 2022.