Privacy Statement

Dystonia Europe (the Organisation), as manager of the domain, is committed to maintaining a high level of privacy protection for its users.  Our Privacy Policy is designed to help you understand how we collect, use and protect the information you provide to us and to help you make informed decisions when using our service.  

In this Agreement, "the Site" refers to the Organization's website, which can be accessed at

"The Service" means the Organization's services accessed through the Website, where registered physical therapists can view exercises and create exercise programs for their patients, which will be made available to the patient via an automatically randomized personal code.

Johanna Blom is the project owner and is responsible for the exercises and content of the platform, but each physiotherapist who uses the exercises in treatment or for home training programmes is responsible, on the basis of his/her licence and professional analysis, for ensuring that the right selection of exercises is made and communicated to the patient. Each physiotherapist applying for registration takes responsibility for ensuring that sufficient knowledge of cervical dystonia is available to test an appropriate and personalised home exercise programme.

The terms "we", "us" and "our" refer to the organisation.

"You" refers to you as a user of our website or service.

By accessing our website or our service, you acknowledge our Privacy Policy and consent to our collection, storage and use of your personal information as described in this Privacy Policy.


We collect "non-personal information" and "personal information". Non-Personal Information includes information that cannot be used to identify you personally, such as anonymous usage data, general demographic information we may collect, referring/exit pages and URLs, platform types, preferences you submit, and preferences generated based on the data you submit and the number of clicks. Personal information includes your email address, city and country, but only for registered physical therapists/physiotherapists, which you provide to us through the website registration process.

Patients do not provide any personal information in the platform, and the physiotherapist-designed training programs are only visible to the tester and the patient themselves. 

1. Information collected through technology

To activate the service, you do not need to provide any personal data other than your email address. To use the Service thereafter, you do not need to provide any additional personal data. However, in order to improve the quality of the Service, we do track information provided to us by your browser or by our software when you view or use the Service, such as the website you came from (known as the "referring URL"), the type of browser you use, the device from which you accessed the Service, the time and date of access, and other information that does not identify you personally. We track this information using cookies, or small text files that contain an anonymous unique identifier. Cookies are sent to a user's browser from our servers and stored on the user's hard drive. By sending a cookie to a user's browser, we may collect non-personal information about that user and keep a record of the user's preferences when using our services, both on an individual and aggregate basis. For example, the Organization may use cookies to collect the following information:

- none

The Organization may use both persistent and session cookies; persistent cookies remain on your computer after you close your session and until you delete them, while session cookies expire when you close your browser.  We store a session cookie and a persistent cookie to keep track of the last exercise a user viewed.

2. Information you give us when you register for an account.

In addition to the information automatically provided by your browser when you visit the site, you must create a personal profile to become a subscriber to the service. You can create a profile by registering with the Service and entering your email address and creating a username and password. By registering, you agree that we may collect, store and use your email address in accordance with this Privacy Policy.

3. Children's privacy

The Site and the Service are not directed to persons under the age of 13. The Site does not knowingly collect or solicit information from anyone under the age of 13, nor does it allow anyone under the age of 13 to register for the Service. If we learn that we have collected personal information from someone under the age of 13 without the consent of a parent or guardian, we will delete that information as soon as possible. If you believe that we have collected such information, please contact us at


Personal information:

Except as otherwise stated in this Privacy Policy, we do not sell, trade, rent or otherwise share your personal information with third parties for marketing purposes without your consent. We do share personal information with vendors who perform services for the company, such as our email communication servers, who have access to the user's email address in order to send emails from us. These providers use your personal data only at our request and in accordance with our privacy policy.

In general, the personal information you provide to us is used to help us communicate with you. For example, we use personal information to contact users in response to questions, solicit feedback from users, provide technical support, and inform users of promotional offers.

We may share personal information with outside parties if we believe in good faith that access, use, preservation or disclosure of the information is reasonably necessary to comply with an applicable legal process or enforceable governmental request, to enforce applicable terms of use, including investigation of potential violations, to address fraud, security or technical issues, or to protect against harm to our users' or the public's rights, property or safety, as required or permitted by law.

Non-Personal Information

In general, we use non-personal information to help us improve the service and customize the user experience. We also compile non-personal information to track trends and analyze usage patterns on the site. This Privacy Policy in no way limits our use or disclosure of non-personal information and we reserve the right to use and disclose such non-personal information to our partners, advertisers and other third parties at our discretion.

If we undergo a business transaction, such as a merger, an acquisition by another company, or a sale of all or a portion of our assets, your personal information may be one of the assets transferred. You acknowledge and agree that such transfers may occur and are permitted under this Privacy Policy, and that any acquirer of our assets may continue to process your personal information in accordance with this Privacy Policy. If our disclosure practices change at any time in the future, we will post the policy changes on the Site so that you can opt out of the new disclosure practices. We suggest that you check the website regularly if you are concerned about how your information is being used.


We employ security measures to protect your information from unauthorized access. Your account is protected by your account password and we encourage you to take steps to keep your personal information secure by not revealing your password and by logging out of your account after each use. We further protect your information from potential security breaches by implementing certain technical security measures, including encryption, firewalls, and secure socket layer technology. However, these measures do not guarantee that your information will not be accessed, disclosed, altered or destroyed if such firewalls and secure server software are breached. By using our Service, you acknowledge that you understand and agree to assume these risks.


You have the right to prevent us from contacting you for marketing purposes at any time.  When we send a promotional message to a user, the user may opt out of further promotional messages by following the unsubscribe instructions contained in each promotional email. You may also indicate that you do not wish to receive marketing communications from us in the footer of the email or by sending an email to Please note that we may continue to send you administrative emails, such as periodic updates to our Privacy Policy.


As part of or commitment to privacy, we do not link or link to any other website or online service.


The Organization reserves the right to change this policy and our Terms of Use at any time.  We will notify you of significant changes to our Privacy Policy by sending a notice to the primary email address listed in your account or by placing a prominent notice on our website. Significant changes will become effective 30 days after such notice. Non-substantive changes or clarifications will be effective immediately. You should periodically check the website and this privacy page for updates.


If you have any questions about this Privacy Policy or the use of this Site, you may contact us by sending an e-mail to

Last Update: This Privacy Policy was last updated on November 8, 2021.